Thursday, April 30, 2009
I have to stay inside today
Well for most people when they wake up to the sun shining it gives them a warm fuzzy feeling inside. However, it reminds me that I can’t go outside today. I have a severe photosensitivity to the UV in the sun or any fluorescent lighting and or any lights that are unprotected UVA & UVB lighting. My rash this morning is pretty minimal, so if I go outside or have too many lights on in the house it will cause my skin to have what looks like an allergic reaction, but my body processes it as a toxic reaction. That's o.k. anyway, I am staying inside because as I thought yesterday, my doctor changed one of my medicines yesterday and this is my second day trying it out. Most of you remember that I had the Lap-Band surgery while I lived in Italy and one of the first things that they informed was..."you cannot take timed release medication". Well I am out of options and yes, they did put me on a timed release medicine that wouldn't you know it is in the shape of a square! I am following doctor’s orders and then rolling on the floor from side to side, etc. to try and get it down into the bottom of my stomach (just joking). It's not that bad and seems to be passing through fine. I am doing much better so far this morning than yesterday, which may be due to the fact that I don't have to go to a morning appointment. My daughter's friends think that I am a vampire and find it interesting that I am "allergic" to the sun. It is kind of funny, but when it is so beautiful outside and I would like to get some fresh air for a while, what I have to do to get myself ready to go out, the thought alone is exhausting in regards to the amount of preparation and energy it will take to do that. If you are interested in reading more about Photosensitivity in some Lupus patients (I am one of the lucky ones) please click this link below. Love to you all and cheers to a good 1/2 day!